On Sunday, June 1, 2014, The New York City Hemophilia Walk takes place in an effort to raise awareness and funds for education, advocacy and research leading to better treatments and cures for bleeding disorders. Zak Stengel, a 12-year old with severe hemophilia A and recipient of the NHF Meritorious Service Award in Honor of Ryan White, explains what living with a blood disease is like, his course of treatment and why it is crucial to set the facts straight and make treatment more accessible.
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